Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study

Hebestreit, Helge; Zeidler, Cornelia; Schippers, Christopher; de Zwaan, Martina; Deckert, Juergen; Heuschmann, Peter; Krauth, Christian; Bullinger, Monika; Berger, Alexandra; Berneburg, Mark; Brandstetter, Lilly; Deibele, Anna; Dieris-Hirche, Jan; Graessner, Holm; Guendel, Harald; Herpertz, Stephan; Heuft, Gereon; Lapstich, Anne-Marie; Luecke, Thomas; Maisch, Tim; Mundlos, Christine; Petermann-Meyer, Andrea; Mueller, Susanne; Ott, Stephan; Pfister, Lisa; Quitmann, Julia; Romanos, Marcel; Rutsch, Frank; Schaubert, Kristina; Schubert, Katharina; Schulz, Joerg B.; Schweiger, Susann; Tuescher, Oliver; Ungethuem, Kathrin; Wagner, Thomas O. F.; Haas, Kirsten

Dual guidance structure for evaluation of patients with unclear diagnosis in centers for rare diseases (ZSE-DUO): study protocol for a controlled multi-center cohort study

Author:

Hebestreit, Helge; Zeidler, Cornelia; Schippers, Christopher; de Zwaan, Martina; Deckert, Juergen; Heuschmann, Peter; Krauth, Christian; Bullinger, Monika; Berger, Alexandra; Berneburg, Mark; Brandstetter, Lilly; Deibele, Anna; Dieris-Hirche, Jan; Graessner, Holm; Guendel, Harald; Herpertz, Stephan; Heuft, Gereon; Lapstich, Anne-Marie; Luecke, Thomas; Maisch, Tim; Mundlos, Christine; Petermann-Meyer, Andrea; Mueller, Susanne; Ott, Stephan; Pfister, Lisa; Quitmann, Julia; Romanos, Marcel; Rutsch, Frank; Schaubert, Kristina; Schubert, Katharina; Schulz, Joerg B.; Schweiger, Susann; Tuescher, Oliver; Ungethuem, Kathrin; Wagner, Thomas O. F.; Haas, Kirsten

Tübinger Autor(en):

Graessner, Holm
Ott, Stephan
Müller, Susanne

Published in:

Orphanet Journal of Rare Diseases (2022), Bd. 17 (1), Article 47

Verlagsangabe:

Bmc

Language:

English

Full text:

http://dx.doi.org/10.1186/s13023-022-02176-1

ISSN:

1750-1172