Health-related quality of life in children and adolescents with tuberous sclerosis complex and their caregivers: A multicentre cohort study from Germany

Willems, Laurent M.; Schubert-Bast, Susanne; Grau, Janina; Hertzberg, Christoph; Kurlemann, Gerhard; Wiemer-Kruel, Adelheid; Bast, Thomas; Bertsche, Astrid; Bettendorf, Ulrich; Fiedler, Barbara; Hahn, Andreas; Hartmann, Hans; Hornemann, Frauke; Immisch, Ilka; Jacobs, Julia; Kieslich, Matthias; Klein, Karl Martin; Klotz, Kerstin A.; Kluger, Gerhard; Knuf, Markus; Mayer, Thomas; Marquard, Klaus; Meyer, Sascha; Muhle, Hiltrud; Mueller-Schlueter, Karen; Noda, Anna H.; Ruf, Susanne; Sauter, Matthias; Schlump, Jan-Ulrich; Syrbe, Steffen; Thiels, Charlotte; Trollmann, Regina; Wilken, Bernd; Zoellner, Johann Philipp; Rosenow, Felix; Strzelczyk, Adam

Health-related quality of life in children and adolescents with tuberous sclerosis complex and their caregivers: A multicentre cohort study from Germany

Author:

Willems, Laurent M.; Schubert-Bast, Susanne; Grau, Janina; Hertzberg, Christoph; Kurlemann, Gerhard; Wiemer-Kruel, Adelheid; Bast, Thomas; Bertsche, Astrid; Bettendorf, Ulrich; Fiedler, Barbara; Hahn, Andreas; Hartmann, Hans; Hornemann, Frauke; Immisch, Ilka; Jacobs, Julia; Kieslich, Matthias; Klein, Karl Martin; Klotz, Kerstin A.; Kluger, Gerhard; Knuf, Markus; Mayer, Thomas; Marquard, Klaus; Meyer, Sascha; Muhle, Hiltrud; Mueller-Schlueter, Karen; Noda, Anna H.; Ruf, Susanne; Sauter, Matthias; Schlump, Jan-Ulrich; Syrbe, Steffen; Thiels, Charlotte; Trollmann, Regina; Wilken, Bernd; Zoellner, Johann Philipp; Rosenow, Felix; Strzelczyk, Adam

Tübinger Autor(en):

Ruf, Susanne

Published in:

European Journal of Paediatric Neurology (2021), Bd. 35, S. 111-122

Verlagsangabe:

Elsevier Sci Ltd

Language:

English

Full text:

http://dx.doi.org/10.1016/j.ejpn.2021.10.003

ISSN:

1532-2130